C-Diff Again?

C-Diff

Well we had to have Kylee tested for C-diff (the bad bacteria that took over in her gut from all the antibiotics) again this week. We were just doing our 2 week follow-up to make sure it was gone. We were sure it was going to come back positive because she has had horrible diarrhea for weeks and the worst looking bottom you have ever seen. Well....the test came back....negative. No way. I told her pediatrician I can't believe it came back negative. It looks and smells like c-diff. She told me to call GI because she ran out of ideas to use on her bottom and to stop the diarrhea. I pretty much spent my whole Friday on the phone with GI. They first thought they wanted to try a new cream for her bottom which of course no one around here has and they have to order it and can't get it until Monday or Tuesday. Then they decided to switch her milk from Peptamin Jr to Peptamin Jr with fiber....I know I said fiber... when she is going to the bathroom 4-5 times a day. I guess they figure because she is getting a slow drip all day that the fiber will bulk it up instead of making it looser. It won't stop the # of diapers but at least make it thicker. They also couldn't find anyone that has the Peptamin Jr with fiber and we have to wait until later next week for that also. Then they called back and decided that they think she may still have C-diff and that it is very difficult to get a positive sample when the stool is so loose. I said I totally agree because I feel like it looks and smells like C-diff. So they decided to put her on Vacomyician instead of Flagil as the Flagil didn't work last time. Well wouldn't you know it...no one carries Vacomyician. Walgreens told me they only have a tablet or injectible. Well the nurse called around and said Thedaclark could make us up some to last us until Monday and then Walgreens will order the liquid for us on Monday. So...hopefully we can get rid of the #2 diapers and the bad diaper rash.

"Little Room"

Well we got our little room this week for Kylee. What can I say about it......so not worth $2800. When they brought it out I told Jason to help her carry it in and she said this is all of it. I couldn't believe this little box with a bunch of "junk" hanging from it is worth $2800. The "junk" is a tin can with string hanging from it, a sewing hoop with Kylee's lovey hanging from it, a flower necklace, bells hanging from a string and a ponytail holder with material on it. It is really hard to describe so I am going to try to post some pictures later so you can see what it looks like. It is just crazy how much money people charge for items just because it is for a child with special needs. The rest of therapy went really well this week. None of them have seen her for weeks. Maybe even a month or more. So they were not sure what to expect. They all thought she looked really well and was very active so I was happy to hear that. It shouldn't take her too long to get back all her skills she lost being sick.

Nurses

Well it sounds like we have most of the paperwork done for the new nurses and to get our regular nurses recertified. Our regular nurses are approved until April 30th. They have to get reapproved every few months by the state. Basically they just check to make sure that she still requires nursing care. I can't wait to get our new nurses. It will be nice to get out once in a while. One of the nurses is going to do one night a week and the other one is going to be our on-call night and weekend nurse if we need someone. I went out Wednesday with Kelly Kling for supper and a few drinks and it was so nice (Thank you Kelly). It was well over due...it is just nice to get out and have some adult conversation once in a while. We also have a wedding coming up in a few weeks for Jason's cousin and Kylee is going to stay home with our nurse Marsha and Keegan is going to my parents and Collin is coming with to the wedding. So excited about that also. Hopefully things are starting to settle down and we can get back into a "normal" routine. I love routine :)