We are home from the hospital. Just got home a little while ago. Kylee is still on oxygen but is doing ok. She really needs the oxygen when she is sleeping. I am hoping it doesn't develop into pneumonia as she just doesn't seem strong enough to cough all that junk up. The nurse said there was 5 kids up there and 4 of them had RSV so it is going around really bad. She said older kids usually just get diagnosed with bronchitis. Kylee use to get some really expensive shots to prevent RSV but she is now to old for them. Our insurance company is probably also kicking themselves in the butt. Since Kylee started school we have had to leave our portable oxygen tank at school because she can't transport it on the bus. We asked our insurance company for a 2nd one in case she would get sick and we would have to take her some where. They decided to deny it. This item cost a couple hundred dollars. Now that they didn't pay that they will be paying for a 2nd ER visit and an ambulance ride. If we would of had it our Special Needs Dr would of just called the hospital and we would of taken her there ourselves and had her go directly inpatient. Sucks to be them...maybe they should listen to this mommy. So I called yesterday to let them know and they are going to re-evaluate it.
Kylee has not been on oxygen 24/7 since she was 1. It seems weird having her back on it and I have to get back into the swing of all the extra stuff that goes along with it.
We would like to thank everyone for all there prayers, well wishes and help. We would like to say a special THANK YOU to our neighbors Steve and Jill. We will be in our house 2 years in June and Steve and Jill welcomed us with open arms. They help so much with our kids. We are truly grateful to them.
.gif)
An Amazing Summer!
2 years ago
5 comments:
I'm so glad you're home! Continuing to pray that she's completely better soon.
Hi Karen,
Thanks for the update, I worry about your little peanut,
and will continue to pray
for her and all your family.
Sheila
I am so glad to hear you are home! Also glad to hear you have help from your neighbours. That makes such a huge difference. Do you do chest physio when Kylee has chest infections? We started it this last year with Zoe and find it makes a huge difference. It usually makes her cough and gets the mucus moving around. It only takes a few mins a few times a day. Not that you have any extra time, but just a thought.
Thinking of you.
Genevieve-Yes we do CPT on her. We just cup our hands and do it. Our nurse that comes on monday has a machine she ordered to do it with. Thanks for the advice. In a time like this we need all we can get.
Zoe just came down with yet another cold (we are hoping this one doesn't turn into pneumonia) and while doing CPT on her yesterday, Zoe actually coughed up mucus! I called Gavin in from the other room to see it since it is the first time ever that Zoe has had a productive cough. It was beautiful! I am hoping this is a good sign of good coughs to come :)
I figured you probably already knew about CPT, but thought I would put it out there just in case. You are so on top of things with Kylee's care. With two other kids, I don't know how you do it. She is lucky to have such a resourceful and supportive mom.
Post a Comment