Sorry it has been a while. Kylee was sick with RSV and was in the hospital for a little while with that. We brought her home and took her in for a check up a few days later and they said that she was doing great and that she had recovered from RSV. I asked if they thought she could still get pneumonia and she said no that she was past that stage but if for some reason she developed a fever to take her in ASAP. So the next day Kylee was very tired and slept most of the day. At 7:00 pm I decided to start to get her ready for bed and when I felt her she was burning up. I took her temp and when it got to 105 I stopped and said get ready we are taking her to the ER. Her temp was threw the rough and her heart rate was 200 (normally it is in the low hundreds). Then she started throw up some yucky colored stuff. We took her to our local ER because we were afraid to drive to far with her. We got her there and they told us they couldn't find anything wrong with her but her WBC was high so she must have an ear infection. I told him I was not leaving there unless he talked to Children's Hospital. So he called there and told them he thought she had an ear infection. They said to giver her a shot of antibiotic and to see our Dr the next day. Well we couldn't get in to see our Dr the next day until the afternoon and Kylee just seemed to be going down hill. I called and talked to my angel in Milwaukee (our nurse coordinator with the special needs clinic) and she said she didn't feel she could wait that long and to call our regular Dr back and see if we could get in sooner. Well she couldn't and they suggested to take her to the ER. So off we went again. I hated thinking I would have to take her to the ER again...we had been there so much and I felt like no one would listen to me. This time we took her to Neenah which is about 30-45 minutes from us but are better equipped to handle Kylee and they listen to me. They did a chest x-ray and said she had pneumonia. They then looked at the x-ray's from the night before and said she had pneumonia then also. They said that it was hard to see on the 1st one because it was behind her heart but that it was there. Her WBC had also tripled from the night before. So off to the hospital we went again however she only had to stay for 1 night. They said they felt that by us getting her to the ER so quickly when the symptoms started she was able to get the antibiotic right away and that is probably what helped her. Then they also said they felt we went thru the wore part of the pneumonia at home. Well Kylee bounced back quickly and even went back to school on Monday. She is doing wonderful. You wouldn't even know that she had been so sick. So it was a long couple of weeks but just reminded me that I am Kylee's mom and I know when something is wrong and not to stop until I get help for her.
This week we head back to Milwaukee on Tuesday for a endocrinologist appointment. It should be interesting to see what they have to say and hopefully she don't pick anything up while she is there as last time we had her there that is when she started with the RSV.
Pumpkin Time Already!
5 years ago
2 comments:
I'm so sorry you had to go through that nonsense in the ER. It's so irritating when they don't listen to you. I'm a RN and I still have to fight them at times. Kylee is lucky to have you to fight her battles. Don't ever back down and always go with your intution. You know Kylee the best and don't let anyone tell you any different especially doctors. Thank God she bounced back quickly! Kylee is definitely a little trooper...a miracle baby. Please give her a big hug for us.
God bless,
Sherry Culvahouse (mom of Kaylee & Allison)
Hi there I am Taylor's mom and I know exactly what you are going through. I went through 4 years of RSV and phnemonia and hospital stays. Hang in there. You are right to trust your instinct. We always know what is best 4 them and who cares if the doctors think we are crazy... after one scary episode with Taylor our doctor will never doubt me again. We had Taylor's adnoids and tonsils out 2 winters ago and scince then we have avoided phnemonia and rsv completly. I don't know if that was just luck but we are 2 years clear of hospital stays and we were always in there 2 to 3 times a year before that. If you ever want to talk feel free to get a hold of me. Good luck with your princess she is beautiful.
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