Neenah

Sorry I haven't posted in a while. A lot has happened. We had made the decision on Thursday to take Kylee off of life supports and leave it up to Kylee as to what happened from there. Well as we know she is a fighter and still handing in there. She is having some lower oxygen stats and harder time breathing but other then that doing pretty good. We didn't expect her to do so well so we really didn't have much of a plan after that. If all goes well we are going to be heading to Neenah to Children's there to be closer to home. Collin came up today to see Kylee. We had talked to the child life specialist on how to explain death and dying to a six year old. She said it would be best for him to see her so that all of a sudden one day she is just gone and he never sees her again. So we decided today was a good day as she looked pretty good and had alot of tubes removed. He was happy to see her. Thanks everyone for all your prayers and support.