1 Step Forward...2 Steps Back

Yesterday was a really bad day for Kylee and for all of us. Her sugar levels went over 600 (that is as high as the meter goes in the room) so she was started on insulin. They were not able to back her down off the vent at all. They wanted to take her to the operating room to place a PIC line (kind of like an IV line under the skin) however they felt that was to risky so they tried it bed side. I told the Dr the only thing I wanted was to be able to hold my daughter so he thought if he did it bed side if something happened I would be right there and could hold her. They ended up not being able to place the PIC line and just but in another IV line. They are having problems not having enough IV lines for everything she needs (medicine, blood products, fluids.....). We talk about possibly taking her off everything and how that whole process works (they let us do pictures with her if we would like, they do her foot and hand prints in stone and paper and then we decided how to go about removing things and keeping her comfortable). She had lots of family come to visit today and I took 24 hours off from phone calls and computer updates. The miss Kylee stepped up to the plate and once again showed us how strong she can be. Her sugars are now down to 200-300. They have started to bring her down on the oxygen part of her vent and her BPs and heart rate have been great. She is such a strong girl. She wanted to show me that it wasn't time to give up yet :) Thank is my girl. I love her so much.