Kylee's EEG Results

We got Kylee's EEG results back on Monday and he said it was very active and that he wanted to up her seizure medication a little quicker then normal. We are going to up her every 3 days for the next 12 days. Then we have to have labwork done and then he will decide where to go after that. We started increasing her meds on Tuesday and she has not vomited. Maybe that will take care of the issue. I do have a few questions for him like if the EEG is active all the time or if it was more active at a certain time of day and I would also like to know what the EEG looked like around 8:00 at night. When they called I had a horrible headache (I was starting with the cold that it seems like everyone has) so I couldn't think to clearly.

Nursing
Kylee's new nurse Brian started on Friday. He is an RN and will be our case manager. He seems like a really nice guy so I am hoping things work out. He is about our age and has a son who is Kylee's age. We now have Marsha, Julie and Brian for nurses. Each one has there own "personality". Marsha calls herself nurse bootcamp. She works Kylee hard. She does lots of therapy with her. Julie she is the loving mother. She does her therapy with her but she loves to hug and snuggle with Kylee. The two nurses are a nice combination for Kylee. I can't wait to see what Brian will bring to the mix.

Equipment
Kylee's stander got ordered on Wednesday. They called and said our insurance said they would cover it but the state will not. The company we are ordering it from said if my insurance pays all but 15% then they will not bill us anything. If they take a larger cut then that then they will have to bill us and then we will us some of our family support money to pay for the difference. They also called and said Kylee's squiggles seating system is in and they are bringing it out on Monday morning. I can't wait to see it and give it a try. Kylee has started sitting in her Bumbo chair really good this last week. She can sit it in for about 10-20 minutes so I can't wait to see how she does in this new chair (if you want to see want the squiggles chair looks like you can see it in my last posting).