We made some tough decisions in the last week about Kylee but have decided that it is time to stop everything and let her go to heaven. She will be staying at the hospital until then. We had to explain to Collin that Kylee will be leaving us and that was so hard. We also made some hand molds of her and made a family collage of our hand prints. Kylee is so peaceful right now. I have never seen her more peaceful in my entire life. Nothing seems to be hard or difficult for her (she was not liking being moved or having her diaper changed and she was throwing up all the time). Please pray that we have the strength to get thru this difficult time and that Kylee goes peacefully. I can not thank the staff at Children's Hospital enough for everything they have done for us. They are amazing.
11 comments:
I came across your blog randomly a couple of weeks ago and have been checking-in every few days. Your family is in my thoughts and I hope you are all given the strengh to handle this difficult situation.
Hi Karen and family, This is Jamie from Children's. I am SO happy to hear she is comfortable. I know that was always the goal, and we sometimes had a hard time making it happen. I know she had a great life with you guys and hope her last days are full of comfort and joy. I pray that your family can find peace knowing she is happy and pain free. Thanks for showing me what a strong loving family looks like and how to care for such a special little girl.
God Bless
Jamie
Hi Karen,
I'm Lori Westphal's pastor at Trinity UCC near Nichols. I just wanted to let you know that we are all praying for you and for your beautiful princess.
Peace,
Pastor Moira
You and your family are in our thoughts and prayers.
I have followed Kylee's story since my newborn daughter received the same diagnosis 2 years ago. I am so sorry. Thank you for the reminder not to take one day for granted. I am praying that the Lord guard you and keep you and your family in the palm of His hand, somehow giving you peace during these dark hours.
God bless your family, your strength and faith are an inspiration to us all. Praying for your family in these unimaginably difficult times.
I pray for you and your family during these really hard days. I can't even imagine the pain you are going through. Our little angels we have been blessed with come into our lives for reasons. They make us stronger in so many ways. How special you are to have been able to raise this princess. She will be yours for all eternity. May your family always remember you have this angel with you ALWAYS. My thoughts are with you.
Our family prayers for peace for all of you. If there is anything you need please let us know.
Many hugs from our family to yours,
Cody, Amy, Jacob and Eve
I just want to say that I am reading your blog and my thoughts and prayers are with you and your family during this time. Your strength amazes me. Kudos...Mommyof6Reviews
These shoes are amazingly light.They are still the best ideal for travelling.If you run cross country or encounter anything wet during your workout or if you're into water sports these Asics Onitsuka Tiger shoes are perfect for you.The traditional sneakers always make you wet of cannot keep you safe, Tod's Women's Shoes so you can try these shoes to experience the difference.
These shoes are amazingly light.They are still the best ideal for travelling.If you run cross country or encounter anything wet during your workout or if you're into water sports these Asics Onitsuka Tiger shoes are perfect for you.The traditional sneakers always make you wet of cannot keep you safe, Tod's Women's Shoes so you can try these shoes to experience the difference.
Post a Comment