Make A Wish

Make A Wish

So now that Kylee is done with her cancer treatment the oncology department made a recommendation for Kylee to receive a Make A Wish. The couple came out and saw us on Thursday night to talk about Kylee's wish. She is wishing for a 3 season room and a outdoor swing. How the process works is that they meet with you ask you different questions and then they take it back to the Make A Wish office and they decide what they are going to do. So we are very excited to find out what Kylee's wish will be. We did however say not trip, swimming pool or pet. Those are all things we would not enjoy or don't have the extra time for right now. So you will have to stay posted to see what Kylee's wish will be.

MRI

Kylee had a MRI done a few weeks ago because she was having really bad seizures. Her worse seizures yet. We had to give her the emergency seizure medicine which we have never had to give to her before. Nothing new showed up on the MRI which is good but the way the Dr (someone who has never seen us before) told me was not so good. He told me nothing changed on Kylee's MRI however we need to decide what we are going to do as Kylee's tumor will probably keep growing and will only make her seizures worse and we will just have to keep increasing her seizure medicine. He told us we should think about palliative care as well as DNR (do not resuscitate) for Kylee. This was a shocker to me. I then asked for all Kylee's MRI results as no one had told me anything about a tumor. So what this Dr was talking about is Kylee has a "growth" that formed from her having a brain bleed when she had high BP and low platelets. It has not gotten any bigger in the last few months but they can not know if it is cancerous unless they do a biopsy on it which since Kylee can not do any more treatment for cancer there is no point in finding out if it is cancerous. The fact that it has not grown is a good sign. We also found out she a a cyst on her penial gland which may explain why she has been so tired. The pineal gland controls your melatonin which deals with your sleep. So tomorrow we are heading to Milwaukee to see several Dr's and ask lots of questions and talk about the palliative care and the DNR. The first few weeks of thinking about all that made me very emotional and I cried alot but now I feel stronger about things and am ready to deal with it.

School

Kylee is back and school and enjoying it. I had a very difficult time letting her go back to school. I felt like she had been thru so much and I had come so close to loosing her that I didn't want to let her go. I just wanted to keep her home and close to me an not share her with anyone. I talked with the school and we decided it was in Kylee's best interest to go back and so I let her go and I must say it was one of my best decisions. Kylee loves school. Almost every day her note from school says how happy she was and how well she did. They send me home lots of pictures and she is smiling and laughing in all of them and playing with her friends. I love it and it makes me feel so much better about letting her go. I love seeing Kylee happy and that is all I can ask for.

**Sorry I haven't updated much lately....things have been a little busy with the kids in school, Collin wrestling and me back at work (for now...my work is getting rid of my department).