Week One

Week One

Week one is almost done. Kylee started both chemo and radiation on Monday. Monday didn't go too bad. She was pretty tired but that was about it. Tuesday they drew her labs and her sodium was done and she had gained a pound. They were thinking she was retaining water. So on Wednesday we had to have labs drawn again and if they were worse or if she gained anymore weight she would be put in patient. Wednesday labs looked better so we were good to go. What they think happened is that Kylee had really bad #2 diapers on Friday so I gave her pedialyte for 24 hours and slowly worked her up to her full feed. They are thinking the pedialyte has less sodium in it then her milk and that threw everything off. Tuesday she had a hard time with the anesthesia. She couldn't keep her oxygen level up so she ended up needing some oxygen. Other then that she is doing pretty well. She is only needing about 1/3 of the anesthesia then what is normal for some one of her size. She also had a skin reaction to the stickers they put over the markings for radiation. He said he has never had anyone allergic to them before I said Kylee always likes to be the first for everything. We also had a VERY difficult time trying to find a place to stay. The Ronald McDonald House was full so had to basically be homeless for a while. Then we ended up staying at a hotel the first night and a place called Kathy's House (wouldn't recommend it to anyone..would rather stay at a hotel for the price you pay) the next night and then finally got into the McDonald House. I can't thank our nurse Teresa enough for all her help down there the first few days. She did all the packing and unpacking for me while I was at the hospital with Kylee. Kylee is down there with my mom and our nurse Marsha for 2 days so I can come home and try to work. I also can not thank them enough for helping us. Our family is really pulling together for us. So we are 10% done. This is going to be a long road but trying to stay positive.

Kylee McGlin Benefit

Some of our friends and family are doing a benefit for Kylee. It is going to be on Saturday September 25th from 6:00 to 9:00 pm at Bean City Bar and Grill. It is going to be a family event with games, DJ and different raffles. They have been doing a wonderful job with setting everything up. I can not THANK them enough for everything they are doing for us. The benefit is going to be a princess theme. They are having T-shirts made up saying Kicking Cancer Princess Style and then the Kylee McGlin Benefit. So THANK YOU....Michelle, Kristi, Kelly and Jill for all your help with this along with everyone else who has donated raffle items so far. This really means a lot to us.