Kylee Has Passed

This will be my last post. Kylee has passed away on Sunday morning at 5:43 am with Jason and I by her side. We had the best last two weeks with her right up to the very end. She was so happy and had alot to say. Jason and I were with her when she passed and it was so peaceful. I can not thank the staff at Children's Hospital enough or Melissa Borth for everything they have done for us during this time. Kylee actually passed on Melissa's birthday. Melissa has been a nurse who has come out to our house since Kylee was just a few days old. Her showing it tonight from 4-7 at Cline and Hanson and tomorrow from 10:00 to 11:00 with funeral at 11:00 at St Patrick's in New London.
Thank you to everyone for all your support during this difficult time.

Update

Things are going well. Kylee is sleeping a lot more but when she is awake she is full of smiles and laughs. I asked someone how much longer they thought she had (I know I can't hold them to a date but just wanted an idea). They said if things keeping going they way they are they are thinking of middle of the week. She is my Irish girl...so Thursday is St Patrick's day. Again...I can not thank everyone for all your thoughts and prayers and I can not thank the staff at Children's Hospital of Wisconsin enough.

Resting Peacefully

We made some tough decisions in the last week about Kylee but have decided that it is time to stop everything and let her go to heaven. She will be staying at the hospital until then. We had to explain to Collin that Kylee will be leaving us and that was so hard. We also made some hand molds of her and made a family collage of our hand prints. Kylee is so peaceful right now. I have never seen her more peaceful in my entire life. Nothing seems to be hard or difficult for her (she was not liking being moved or having her diaper changed and she was throwing up all the time). Please pray that we have the strength to get thru this difficult time and that Kylee goes peacefully. I can not thank the staff at Children's Hospital enough for everything they have done for us. They are amazing.