Week 3 and 4

Wow...2 weeks have gone by and I have updated. That is because they have been a busy few weeks. For the most part Kylee is doing really well. She continues to have low levels for her WBC and her blood as well as dehydration issues so we have been getting blood transfusion and IV fluid. She has also lost her hair. This was really hard for me. I knew it was coming but no matter how much you prepare yourself for it you are never truly prepared. It was falling out in large clumps and was getting all over her face and mouth so we decided to go ahead and shave it. It was difficult to do but was for the best. On a positive note about that.....We have some really great friends....Ashley Murphy and her family made Kylee so adorable scarfs. They are all decked out with flowers and bows and are so cute. I have also had several people offer to make hats and headbands for her. Everyone has been so wonderful about helping me get thru Kylee loosing her hair and helping her look like the princess she is. Kylee also has been running a fever of 101 for a few days last week so they had to watch her closely with that as she has no immune system and a fever of 101 is grounds for hospitalization but she seems to have gotten over that all on her own. Her heart as has been checked out and things look good there. Nothing has changed in the last 6 months on that so that was very good news. I think that has basically been our last 2 weeks. Only 2 weeks left of the 6 weeks radiation. It is all a blur and will be happy when it is over :)
Thank you everyone for all the support you have given our family. I will try to post pictures soon. We have been taking lots of them during this process.