CVS and Hip Dysplasia
It has been a while since I have posted but things have been crazy in our household. Kylee has been sick for the last couple of weeks. It started out with what we thought were migraine headaches. She would just cry and cry and act like the lights hurt her eyes. So we were calling around to Dr's trying to get her treated for the migraines. It took her 3 days but she seemed better. Then the next week she started all over again however this time she also had vomiting issues with it. So we treated her again as a migraine headache. She seemed better for a day and then it seemed to start all over again. We had her checked out and did x-rays and they couldn't find anything to cause her vomiting. Today we talked with the GI Dr and he has diagnosed her with CVS (cyclic vomiting syndrome). So basically they will give her a medicine to treat the vomiting (same thing they give chemo patients) and then they will give her a medicine to try to keep her from having another "cycle". Now with all that being said...I think she has had this for over a year. In Feb of this year our friend Beau was diagnosed with it. His mom and I were talking and said how much it sounded like Kylee. Then she seemed to get better. That is how it works. They will have issues with throwing up and then they seem better. So just happy to have a diagnosis and a treatment plan.
While we had the testing done for her stomach we also found out that Kylee has hip dysplasia and it is getting worse. Well first off I never knew she had it...as far as I knew all hip x-rays she had were normal. She hasn't had one in a year so it developed some time in there. So we are off to add 2 more doctors to our list for that along with some shoulder clicking. We will be adding a rehab doctor and a orthopedic.
Computer Issues
We have been without a home computer for some time (part of my reasoning for not post) as ours decided to die. THANK YOU to my wonderful friend Ashley (Beau's mom) who is donating me one to I can stay connected with everyone. I have been lost with out it.
School
Well Kylee finished up school. She will be off for a few weeks and then start summer school. They had such a high response for summer school in her class that she is now limited to only 2 days a week. Which will be ok. Then on the days she doesn't have school we are taking her to the local hospital for therapy. She has come a long way with her therapy at school. She is holding her upper body so much better. Sitting alone much better (I am hoping for a complete independent sitter by her 4th b-day). Playing and reaching for toys. Tracking toys with her eyes and just liking being around people more. We are also looking at doing story time at the library with her so that it would be something similar to school. We are trying to keep her in a routine. She likes routine.
Vacation
Next week we are on vacation. As much as this breaks my heart we have decided to leave Kylee at home with our nurses during our waterpark stay. Kylee can only handle it at the waterpark for a short time and then she wants to be back in the room. With the 2 boys being so active and each interested in different things it is hard for just one person to take both the boys. It will be hard but good for everyone. Kylee will be much happier at home then anywhere else and we have such wonderful nurses that I know she will be in good hands and well taken care of (spoiled).
Happy Summer Everyone!!!
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