School

School

It has been a while since I posted. Not too much new to tell everyone. School is going well for Kylee. She is almost up to staying for the full 3 hours and will probably start riding the bus next week. I called the bus garage on Friday and pick up is at 6:55 am and school starts at 8:00. I felt that was way to long for her to be on the bus so we are going to have them drop off all the other kids and come back and get her. So she probably won't be starting school until 8:15 but that is better then an hour bus ride. Then she will ride the bus home with the other kids which is only 30 minute ride home. Our nurses will be with her the whole time. I think on Friday they were happy they were there. Kylee was so sleepy when she left for school. The nurse said once they were there for a while she looked like her lips were blue and her hands and feet were so cold and her fingers didn't have good response time. Our nurse decided to check her BP and couldn't hear it. When she finally got it she said it was normal but very faint. So they were going to send her home when just like that she woke up and everything was great. It is funny how fast she changes. I'm still adjusting to her being in school. She just seems like such a big girl. She has a little red headed boy in her class that really likes to play with her (taking after mom with those red headed boys). She made us a wonderful Christmas present. It was a heart with her hand prints on it and a little poem about hand prints. Enough to make anyone cry.

Diapers Never End

Kylee has been having major issues with #2 diapers again. They seem never ending. Around Christmas time we thought she had C-diff again but the test came back negative. She was so uncomfortable and would cry until she would go to the bathroom. So we tested her again and it is still negative. Her bottom is getting so sore from going so much. You no more then change her and 5 minutes later you have to change her again. No fun for either of us. Then last week one day she had blood coming out of her stomach drainage tube. I called the Dr about it and he said he just thinks her stomach is irritate and to clean her stomach with salt water. I have to push salt water into her tummy and then leave it in there for a while and suck it back out. This is suppose to help it heal. Just one more thing to added to my nursing degree :)

We also found out that she was lacking some of her vitamins. Her milk she drinks is suppose to have everything she needs but she is lacking magnesium and selenium so 2 more medications to add to her day. She takes so many. We also have to have her thyroid checked again and if it that is not better she will be having some more medication added to her day. Her TSH level and her T3 and T4 were all abnormal for 2 tests in a row but they wanted to give her a month and see if it changes.

Other then that not much new to post. Things are going good. I have pictures but can't find the cord to the camera so will post them as soon as I can find it.