The Best Christmas Present
We had Kylee's oncology appointment today and it was filled with many emotions. Kylee got her beads of courage today. It is a necklace with a bead for everything she has been thru (she gets one bead for radiation, losing her hair, every poke she has gotten, every transfusion and the list goes on). Her MRI results were normal. For the type of cancer Kylee has they usually do MRI's every 3 months for the next year to year and a half but because if Kylee's tumor was to return we wouldn't be able to do anything about it (she can't handle radiation or chemo) we have decided not to do the MRI every 3 months unless she is showing symptoms of it being back. Her IV was stopped today. Her needle was removed from her port (she always has a needle in her chest in case she needs labs or transfusion so they don't have to poke her every time). Her port will be removed in January and all of her counts have doubled which means her bone marrow is starting to work. They said her bone marrow will always be sensitive like when she gets sick and things so they will just have to keep an eye on it during those times. Since Kylee is now done with her treatment for cancer we got to ring the bell. A bunch of her nurses and Dr's and office people all stood around us while I read the plaque and then Kylee and I rang the bell....I cried like a baby. I was so full of emotions. So happy that she is doing great and we are done...sad that our odds were decreased from 85% to 50% and just in complete shock...it feels like the past six months has just been a bad dream and that someone just woke me up today and it is over. Kylee is going to be heading back to school this week and we have no scheduled trips to Milwaukee until after the Holidays. I am so excited......What a great early Birthday present for Kylee and a early Christmas present for Jason and I....who could ask for more.
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