Wednesday, November 18, 2009

School

Pictures


Kylee at story time at the library for Halloween

Kylee and her brother at story time

Kylee in her swing in the basement. She loves to swing. Can't wait to get our new swing.


When Kylee is tired she just falls asleep where ever she wants to.

School

Our life has been so busy the last few weeks. Kylee has been home from the hospital for a while and feeling much better but we have been busy with getting her ready for school. We have had lots of meetings with the nurse, PT, OT, Speech, vision teacher and mobility specialist. Kylee's IEP is on Dec 2nd and she will more then likely be starting right after that with a slow transition into school. How time has gone by so fast. It seems like just yesterday we were sitting in the NICU with her and now she is going to school. It brings tears to my eyes just thinking about it. I think she is really going to like school and do wonderful. We go on Friday to meet her teacher and see the class room as well as meet with speech and PT.

Nurse

We have hired 2 nurses as one of our nurses has left. We hired a Tuesday nurse who I must say I am in LOVE with. She has lived the life and I think she will be a great resource for me. She has a 23 year old daughter with CP and decided to become a nurse after that....hmm....sounds like the foot steps I want to take. We have also hired another nurse for 1-2 nights a week and for an occasional weekend. She is a "new" nurse but I always say that is not bad as they often have fresh new ideas.

Big Girl Bed

Kylee has been sleeping in her big girl bed for a week now and loving it. My dad has made a few adjustments to a twin bed so she has more room to roll around. She is so happy in there she smiles and laughs every time you put her in it. I can't thank my dad enough for everything he has done for her. He also made her a wooden bench for us to practice sitting on and also to place toys on while we are practicing sitting. Kylee has started to get more interested in toys and is reaching out for them which she hasn't done since she was 6 months old. We are so excited with the progress she is making developmental wise. I will try to post pictures of the bed and bench next time....I also want to post pictures of her on her school trip on Friday.



Standing
Here is a little video of Kylee standing next to the sofa. She has to lay over the sofa but it is a start. This was my first time trying to tape anything on my camera so it is side ways and doesn't last long because she moved her leg and I thought she was going to fall but she was only readjusting herself.


Wednesday, November 4, 2009

Hospital Visit

Don't have much time to post right now but just wanted to let everyone know that Kylee has been in the hospital since Saturday and we just got home today. She has c-diff yet again and had stuff coming out both ends on Saturday so we took her in for what we thought would be a quick IV and sent on our way but it didn't happen that way. She is doing much better and we are all happy to be home. I will try to post again soon.